Please join us on Thursday, May 13, 2021, at 8:00 PM GMT [convert to local time] for the first of four sessions in our new for 2021 webinar series. Session I is titled The Bloom Syndrome Registry: Supporting the Bloom Syndrome Community. This session will be presented by staff of the Bloom Syndrome Registry, run 60 minutes (including time for Q&A), and be recorded.

Session Overview: The Bloom Syndrome Registry has been collecting information about Bloom syndrome for over 25 years and has been useful in understanding the medical issues facing our children and families. In this webinar, we will take an in-depth look at what the Bloom Syndrome Registry is and what more it can do for our community. We are planning for a short presentation about the Registry, with plenty of time left over for your questions and your suggestions for the future.

Advance registration is required. Once your registration is approved, you will receive a confirmation email (to save) with details about joining the webinar.

We look forward to seeing you on May 13!