A Milestone for the Bloom Syndrome Community: First Clinical Virtual Tumor Board Discussions Held
The Bloom Syndrome Association (BSA) is pleased to share an important milestone in our effort to improve cancer care for individuals with Bloom syndrome: the completion of the first two clinical Virtual Tumor Board (VTB) discussions. These meetings mark an early but...
Life Beyond the Diagnosis: Well-Being and Community in Bloom Syndrome
On October 25, 2025, more than twenty members of the Bloom Syndrome community came together for a heartfelt Bloom Zoom discussion: Life Beyond the Diagnosis: Well-Being and Community in Bloom Syndrome. The session explored how mental health and well-being intersect...
Launching the Global Ambassadors Program: Connecting Bloom Syndrome Support Around the World
The Bloom Syndrome Association (BSA) proudly announces the launch of our Global Ambassadors Program, an international network of dedicated volunteers representing the Bloom syndrome community across the globe. The BSA serves people and families affected by Bloom...
Announcing our new Research Council and Patient-Centered Research Strategy!
Announcing our new Research Council and Patient-Centered Research Strategy! The Bloom Syndrome Association (BSA) is proud to announce two important milestones: the creation of our Research Council and the launch of our Patient-Centered Research Strategy (SECURE...
Honoring Rare Cancer Day with a $500,000 Gift for Bloom Syndrome
Yesterday, on Rare Cancer Day, the Bloom Syndrome Association (BSA) reflected on the challenges faced by those living with rare cancers - and celebrated an extraordinary milestone: a $500,000 gift to support our ongoing work to understand and address cancer in Bloom...