Shehla Mohammed, MD, FRCP

Clinical Researcher

Shehla Mohammed is a paediatric clinical geneticist with 28 years’ experience predominantly in rare genetic conditions and in the care of children and families with complex life-limiting disorders. Originally a paediatric intensivist, she undertook further training in Clinical Genetics and was as an ICRF Clinical Research Fellow in Cancer Genetics at Guy’s Hospital. Until 2017, she was Head of Service of the Guy’s Regional Genetics Service (SE Thames Regional Clinical and Diagnostic Laboratories) for 20 years.

Shehla has a special interest in translating new technologies into a clinical setting and to enable the successful delivery of multidisciplinary and patient-focused services. With a strong clinical and managerial background, she has successfully advocated for rare diseases and has developed and leads National Highly Specialist Multidisciplinary Services for a number of complex disorders with colleagues from the dedicated Rare Diseases Centre at St Thomas Hospital, London.

Shehla has been the Principal Investigator in Phase III clinical trials and has effectively fostered international collaborations to improve patient outcomes for rare and ultra-rare, multi-system disorders. She has been involved with a number of professional bodies. Currently, she is a member of the Highly Specialised Technologies Evaluation Committee at NICE (which assesses novel therapies for rare and ultra rare disorders for implementation in the NHS), a member of the England Rare Disease Framework Working group (Sept 2021- to date), an Associate of the PHG Foundation at Cambridge and a Trustee for a number of patient support groups.