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Announcing our new Research Council and Patient-Centered Research Strategy!

by Kelly Adolph | Oct 7, 2025 | Uncategorized

Announcing our new Research Council and Patient-Centered Research Strategy! The Bloom Syndrome Association (BSA) is proud to announce two important milestones: the creation of our Research Council and the launch of our Patient-Centered Research Strategy (SECURE...

Honoring Rare Cancer Day with a $500,000 Gift for Bloom Syndrome

by Kelly Adolph | Oct 1, 2025 | Blog Post

Yesterday, on Rare Cancer Day, the Bloom Syndrome Association (BSA) reflected on the challenges faced by those living with rare cancers – and celebrated an extraordinary milestone: a $500,000 gift to support our ongoing work to understand and address cancer in...

Blossoming Hope: Join the Event Management Team for the 2026 Bloom Syndrome Association Family Conference 

by Kelly Adolph | Aug 19, 2025 | Blog Post

 Help Us Cultivate Connection and Hope in Los Angeles!  The seeds of excitement are officially planted—planning for the Bloom Syndrome Association’s 2026 Family Conference has begun, and we’d be over the moon to have you grow with us! Volunteers are the heart of the...

BSA Announces 2024 Seed Grant Awards to Advance Bloom Syndrome Research

by Kelly Adolph | Aug 6, 2025 | Blog Post

The Bloom Syndrome Association is proud to announce three new seed grant awards that will support innovative research to improve understanding, care, and future treatment options for individuals living with Bloom syndrome. These projects, selected through a...

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Our mission is to connect, educate, and support the international Bloom syndrome community and stimulate research that leads to longer, healthier lives.

 

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