by Webmaster | May 1, 2022 | Blog Post
We are pleased to inform you that registration for the 2022 Bloom Syndrome Patient & Family Conference is now open! All family members who are planning to attend, including children, must be registered by July 15, 2022. However, we encourage you to register at...
by Webmaster | Jan 10, 2022 | Blog Post
Here’s a quick update regarding our next patient & family conference, scheduled for August 5-7… We are cautiously optimistic that the pandemic will have resolved to a point where most people feel comfortable traveling to and meeting in-person in Chicago. We...
by Webmaster | Nov 12, 2021 | Blog Post
On November 9, 2021, the Bloom Syndrome Association participated in a think tank hosted by the University of Pennsylvania’s Orphan Disease Center (ODC). The impetus for this event was an anonymous donation to the ODC in direct support of Bloom syndrome...
by Webmaster | Sep 24, 2021 | Blog Post
Our next community gathering is scheduled for Wednesday, September 22, 2021, at 8:00 PM GMT [convert to local time], and will run 60 minutes. BSA community gatherings are informal, online events geared toward social networking, group discussions, and the sharing of...
by Webmaster | May 31, 2021 | Blog Post
Our next community gathering is scheduled for Tuesday, June 22, 2021, at 8:00 PM GMT [convert to local time], and will run 60 – 90 minutes. BSA community gatherings are informal, online events geared toward social networking, group discussions, and the sharing...
by Webmaster | Apr 19, 2021 | Blog Post
Please join us on Thursday, May 13, 2021, at 8:00 PM GMT [convert to local time] for the first of four sessions in our new for 2021 webinar series. Session I is titled The Bloom Syndrome Registry: Supporting the Bloom Syndrome Community. This session will be presented...
