by Kelly Adolph | Aug 19, 2025 | Blog Post
Help Us Cultivate Connection and Hope in Los Angeles! The seeds of excitement are officially planted—planning for the Bloom Syndrome Association’s 2026 Family Conference has begun, and we’d be over the moon to have you grow with us! Volunteers are the heart of the...
by Kelly Adolph | Aug 6, 2025 | Blog Post
The Bloom Syndrome Association is proud to announce three new seed grant awards that will support innovative research to improve understanding, care, and future treatment options for individuals living with Bloom syndrome. These projects, selected through a...
by Webmaster | Mar 1, 2023 | Blog Post
In honor of Rare Disease Day 2023, we’ve launched a fundraising campaign featuring t-shirts with the new Bloom Syndrome Association logo below! Our goal is to help spread awareness of all rare diseases, including Bloom syndrome, and to educate and support all...
by Webmaster | Jul 17, 2022 | Blog Post
The 2022 Bloom Syndrome Patient & Family Conference is right around the corner on August 5-7! Conference registration is now closed. Please contact Susan Zaslaw (smzaslaw@gmail.com) if you need to update your registration information. See you...
by Webmaster | Jun 9, 2022 | Blog Post
Below is a note from Dr. Chris Cunniff, Director of the Bloom Syndrome Registry, who will be retiring on June 30. Dear Members of the Bloom Syndrome Community, After 35 years of work as a medical geneticist and academic pediatrician, I am looking forward to beginning...
by Webmaster | May 1, 2022 | Blog Post
We are pleased to inform you that registration for the 2022 Bloom Syndrome Patient & Family Conference is now open! All family members who are planning to attend, including children, must be registered by July 15, 2022. However, we encourage you to register at...
