Sign up for our mailing list


By signing up, you’ll hear about the latest information and upcoming events!

Join the Bloom Syndrome Community Facebook group


The BSA maintains a closed group on Facebook. Ask questions to the group, see profiles of others in our community, and make connections with others from around the world!

Read the Patient & Family Handbook


Written by families, for families! Let us know if there’s more information you want in here, or if you’d like it in another language.

Share the ‘Health Supervision Recommendations’ with your care team


It’s critically important to watch carefully for cancer or other complications due to Bloom syndrome.

Volunteer with the BSA


We are a 100% volunteer-run organization! If you, your friends, or family want to get involved, we’d love to have you!