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We want to hear from you!

Have a question or comment? Would you like to tell us more about yourself? Please complete this form and someone from our Community Engagement team will respond within a day or two. You can also use this form to indicate your BSA communication preferences.

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BSA mailing list

Submission of this form will add you to our mailing list to receive email updates on BSA news and events.

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This information will be entered into our community database and used for demographic analysis purposes, only.

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Where you live

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Your relationship to Bloom syndrome

Please select all that apply.

I have Bloom syndrome

I have one or more children with Bloom syndrome

I have another family member or friend with Bloom syndrome

I’m a Bloom syndrome clinician or researcher

I’m a Bloom syndrome community supporter

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Your year of birth

This information helps us better understand the age demographics of our community.

Your first Bloom child's year of birth

This information helps us better understand the age demographics of our community.

Your second Bloom child's year of birth

This information helps us better understand the age demographics of our community.

Your third Bloom child's year of birth

This information helps us better understand the age demographics of our community.

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How We Use and Protect Your Data

The Bloom Syndrome Association is committed to protecting your privacy. Any personal data you provide will be used solely for the purposes for which it was obtained, such as providing services or communicating with you. We do not sell or share your personal information with third parties without your consent and we implement appropriate technical and organizational safeguards to ensure the confidentiality, integrity, and security of your data. You may update your responses or opt-out altogether at any time by emailing info@bloomsyndromeassociation.org.

We want to hear from you!

How We Use and Protect Your Data

Mission Statement

About Bloom Syndrome

Resources for Patients & Caregivers

Research

Get Involved

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