Here's a quick update regarding our next patient & family conference, scheduled for August 5-7… We are cautiously optimistic that the pandemic will have resolved to a point where most people feel comfortable traveling to and meeting in-person in Chicago. We...

On November 9, 2021, the Bloom Syndrome Association participated in a think tank hosted by the University of Pennsylvania's Orphan Disease Center (ODC).  The impetus for this event was an anonymous donation to the ODC in direct support of Bloom syndrome research. The...

Our next community gathering is scheduled for Wednesday, September 22, 2021, at 8:00 PM GMT [convert to local time], and will run 60 minutes. BSA community gatherings are informal, online events geared toward social networking, group discussions, and the sharing of...

Our next community gathering is scheduled for Tuesday, June 22, 2021, at 8:00 PM GMT [convert to local time], and will run 60 - 90 minutes. BSA community gatherings are informal, online events geared toward social networking, group discussions, and the sharing of...

Please join us on Thursday, May 13, 2021, at 8:00 PM GMT [convert to local time] for the first of four sessions in our new for 2021 webinar series. Session I is titled The Bloom Syndrome Registry: Supporting the Bloom Syndrome Community. This session will be presented...