An international meeting about Bloom's syndrome and related disorders, connecting medical and scientific researchers to patients and their families, is scheduled for Spring 2016. For more information, please see RECQ2016 – Partnering for Progress.

To help create a more connected and recognizable member community, we would like to populate the General Album of our community photo gallery with as many prized personal photos (current or past) as you’re willing to share. Photos in the General Album are visible only...

Follow the Bloom Syndrome Association on social media. We're now on Facebook and Twitter. Find us there, and share what you like with others.

Dear All, Michele Bianco and Gerard Bianco Jr. have set up an online fundraising campaign and a walk on May 17th, in Brooklyn, NY, in memory of Vanessa Bianco (Michele's daughter, Gerard's sister) to support the Bloom's Syndrome Foundation. Vanessa was born in 1979,...

In response to helpful feedback from several first-time visitors and new members of this website, we’ve streamlined the member registration process. It is now much quicker and easier to become a member of the BSA. To any returning visitor who may have otherwise joined...