by Kelly Adolph | Oct 30, 2025 | Blog Post
On October 25, 2025, more than twenty members of the Bloom Syndrome community came together for a heartfelt Bloom Zoom discussion: Life Beyond the Diagnosis: Well-Being and Community in Bloom Syndrome. The session explored how mental health and well-being intersect...
by Kelly Adolph | Oct 21, 2025 | Blog Post
The Bloom Syndrome Association (BSA) proudly announces the launch of our Global Ambassadors Program, an international network of dedicated volunteers representing the Bloom syndrome community across the globe. The BSA serves people and families affected by Bloom...
by Kelly Adolph | Oct 7, 2025 | Blog Post
Announcing our new Research Council and Patient-Centered Research Strategy! The Bloom Syndrome Association (BSA) is proud to announce two important milestones: the creation of our Research Council and the launch of our Patient-Centered Research Strategy (SECURE...
by Kelly Adolph | Oct 1, 2025 | Blog Post
Yesterday, on Rare Cancer Day, the Bloom Syndrome Association (BSA) reflected on the challenges faced by those living with rare cancers – and celebrated an extraordinary milestone: a $500,000 gift to support our ongoing work to understand and address cancer in...
by Kelly Adolph | Aug 19, 2025 | Blog Post
Help Us Cultivate Connection and Hope in Los Angeles! The seeds of excitement are officially planted—planning for the Bloom Syndrome Association’s 2026 Family Conference has begun, and we’d be over the moon to have you grow with us! Volunteers are the heart of the...
by Kelly Adolph | Aug 6, 2025 | Blog Post
The Bloom Syndrome Association is proud to announce three new seed grant awards that will support innovative research to improve understanding, care, and future treatment options for individuals living with Bloom syndrome. These projects, selected through a...
