News & Events 


Rare Disease Day Fundraiser: Get Your BSA T-Shirt Today!

In honor of Rare Disease Day 2023, we've launched a fundraising campaign featuring t-shirts with the new Bloom Syndrome Association logo below! Our goal is to help spread awareness of all rare diseases, including Bloom syndrome, and to educate and support all...

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2022 Conference Registration is Now Closed

The 2022 Bloom Syndrome Patient & Family Conference is right around the corner on August 5-7! Conference registration is now closed. Please contact Susan Zaslaw ( if you need to update your registration information. See you soon!

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Transition Time for the Registry

Below is a note from Dr. Chris Cunniff, Director of the Bloom Syndrome Registry, who will be retiring on June 30. Dear Members of the Bloom Syndrome Community, After 35 years of work as a medical geneticist and academic pediatrician, I am looking forward to beginning...

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2022 Patient & Family Conference Registration Is Open!

We are pleased to inform you that registration for the 2022 Bloom Syndrome Patient & Family Conference is now open! All family members who are planning to attend, including children, must be registered by July 15, 2022. However, we encourage you to register at...

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2022 Conference Update

Here's a quick update regarding our next patient & family conference, scheduled for August 5-7… We are cautiously optimistic that the pandemic will have resolved to a point where most people feel comfortable traveling to and meeting in-person in Chicago. We...

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