Dear All, Gerard Bianco Jr., a member and active supporter of the Bloom’s Syndrome Association, recently launched an online fundraiser in loving memory of his sister, Vanessa. Vanessa was born in 1979, diagnosed with Bloom's syndrome before her first birthday, and...

RECQ2016 – Partnering for Progress, an international meeting connecting medical and scientific researchers to patients and families affected by Bloom's syndrome and related disorders, is scheduled for May 28 – 30, 2016, in Seattle, Washington. The program will include...

An international meeting about Bloom's syndrome and related disorders, connecting medical and scientific researchers to patients and their families, is scheduled for Spring 2016. For more information, please see RECQ2016 – Partnering for Progress.

To help create a more connected and recognizable member community, we would like to populate the General Album of our community photo gallery with as many prized personal photos (current or past) as you’re willing to share. Photos in the General Album are visible only...

Follow the Bloom Syndrome Association on social media. We're now on Facebook and Twitter. Find us there, and share what you like with others.