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3rd Annual Bloom’s Syndrome Awareness Fundraiser
Michele Bianco and Gerard Bianco Jr. have recently launched an online fundraiser in loving memory of Vanessa Bianco (Michele's daughter, Gerard's sister). Vanessa was born in 1979, was diagnosed with Bloom's syndrome before her first birthday, and died of cancer at...
Update on RECQ2018
For patients and families who may be considering attending this international conference, RECQ2018 will have greater emphasis than RECQ2016 on the mechanisms of aging observed in the progeroid syndromes (which traditionally include Bloom syndrome), with less general...
Save the Dates!
An international meeting about Bloom's syndrome and related disorders is scheduled for Winter 2018. For more information, please see RECQ2018.
Note of Appreciation
Special thanks to the RECQ2016 Conference Organizing Committee for its benevolent distribution of residual funds from the Seattle conference to support the activities of the Bloom Syndrome Association and Rothmund-Thompson Syndrome Foundation. Additional thanks to...
Campaign Update
The tally is nearly complete for the 2016 Bianco Family’s Fundraiser. This year’s online fundraising campaign in memory of Vanessa Bianco and May 22 walkathon in Brooklyn, NY, for Bloom’s syndrome awareness raised more than $20,000 (online and through the mail) for...
